My Fundraising Page
Get ready because you are going to get tired of hearing me blab about this. But the fundraising and true running season has begun. And I’m ready to raise $$$$ and run for a REASON! So please consider donating and feel free to pass along my page to all your media outlets and web-based friends 
Light the Night Walk
Donate to a Member and walk with us, or join our team and raise $100!! Walk is on Saturday October 22nd.
More Charity Stuff…. because it’s super important. And it’s fall, we got to party and have fun all summer and now it’s time to think about other people who didn’t get to enjoy and have that same privilege.
Did you Sign Up Yet?
I forgot the most important part! And don’t forget about cord blood donation too… easy and simple. And it’s all FREE! Here’s another journal post that I came across. I’m actually enjoying going through some of these and reading things from last year. It really puts everything into perspective. Today you are worried about chemo and tomorrow you are worried about your chem lab.
Tuesday, November 2, 2010 12:33 PM, EDT
Morphine + Benadryl + Ativan = tired Harv!!! Oh yeah plus having Leukemia. So the bone marrow biopsy is done. The NP did a great job… they are VERY painful and uncomfortable procedures! Harv is happy that the pain is over, now it’s just the anxiety of waiting for the results. We should hear back on Thursday or Friday, and will know if it did not work – to see if he needs another round of chemo or not. So let’s keep praying that Harv can finally catch a break and everything looks good with the biopsy! More blood and more platelets today, the norm around here. I would love to know how many gallons of blood HUP goes through in a day. Give blood if you can! And think about joining the Bone Marrow Registry… again. (I am annoying, I know). But so important and so easy 
True story… I don’t know real names, but this is a story that I heard through one of the other patients here on the floor. It’s someone she met through her own Leukemia diagnosis… meeting other patients with similar stories. So… there was a young woman who lived in TX (we’ll call her Sally) who got diagnosed with Leukemia a little while before her wedding. She needed a Bone Marrow transplant and did not have a sibling match. Luckily she was able to find a match through the National Marrow Donor Program. A middle aged male living in Chicago (we’ll call him Jim), got a call that he was a match for someone and was asked to donate. Since you are not allowed to meet your donor until a year after your transplant, Sally had no idea who Jim was. The transplant was a success and Sally fully recovered and got back to living her life and planning her wedding. Though having not yet met Jim, she sent him a wedding invitation and he attended. The time came for the first dance… instead of dancing with her husband, Sally announced that there was a true angel in attendance and asked Jim to have her first dance. She said she would not be at her wedding at all if it were not for Jim!
And I’m sure you were all wondering about my workout…
WORKOUT – 65min elliptical, stretches, weights, yoga
Considering Joining the Bone Marrow Registry?
Read this…
This time last year to the date we had just found out that a random bone marrow donor was found for Harvey. This, was huge! One more major step down and something else that would add a tiny increase to his already low odds of getting through the transplant. More hope we had!
Wednesday, October 6, 2010 12:46 PM, EDT – written by yours truly
So the conclusion from the appointment yesterday is that the Sprycel doesn’t seem to be working hard enough, to the point where it will bring Harvey back down to a Chronic, safer level. We are going to give it one more week – let’s all pray that something miraculous happens before next Tuesday! If not then he will be admitted into the hospital for about 3-4 weeks to receive traditional chemotherapy.On a good note… the donor seems to be all lined up. They found a 10 of 10 match, and a young donor – which is always more helpful. So thank GOD for this 19 year old male, somewhere out there in the US, who decided to join the bone marrow registry!!
join!
I am still very thankful for whoever the guy was who decided to add himself to the Bone Marrow Registry, even though Harvey never got to use his stem cells… he still gave us hope.
